AFC is deeply concerned that Governor Pat Quinn and the General Assembly are considering cutting HIV programs by $4 million or 14%, which will actually lower state funding for HIV prevention, housing, corrections, minority health, perinatal HIV, and harm reduction programs by 50%.

Based on public health data these cuts could result in 108 additional people becoming infected with HIV, resulting in over $40 million in lifetime medical costs; and nearly 1,000 HIV-positive persons losing access to housing and vital supportive services.

If you’ve had enough we urge you to take action in the following ways:

1. E-mail the governor and your state representative and senator
2. Use the HIV budget toolkit below to easily communicate with their elected officials about the budget cuts
3. Attend the 2012 Illinois HIV/AIDS Lobby Day on Wednesday, April 18, 2012

Illinois HIV Budget Toolkit

• HIV Funding Cut Impact Fact Sheet
• Sample Letter to Lawmakers on HIV Budget Cuts
• Sample Phone Call Script to Lawmakers
• No HIV Funding Cuts Senate Postcard
• No Funding Cuts Representative Postcard
• Testimony Worksheet on HIV Budget
• Medicaid Fact Sheet

Facing a grim fiscal situation, Illinois Governor Pat Quinn proposed a $33.9 billion state spending plan that includes a $4 million funding reduction for HIV programs.  The governor also proposed deep Medicaid funding cuts, which would severely hamper access to health care for people with HIV.

The governor’s proposal seeks $25.4 million in FY13 state funding for HIV services through the Illinois Department of Public Health (IDPH), a reduction of 14 percent from the current fiscal year.  Budget blueprints released yesterday indicate Gov. Quinn proposes no funding cuts for the AIDS Drug Assistance Program (ADAP), which provides life-saving medications to people with HIV. As a result, the entire $4 million funding cut would come out of community-based HIV prevention, housing, corrections, minority health-promotion and harm reduction programs. 

While the AIDS Foundation of Chicago (AFC) lauds the Governor’s recommendation for full ADAP funding, it strongly opposes the overall funding cut that will decimate community-based HIV programs.

“We are committed to working with members of the General Assembly and the Quinn Administration to restoring proposed funding cuts,” said AFC President/CEO David Ernesto Munar.  “AFC urges people affected by HIV and their advocates to register for the April 18 HIV/AIDS Lobby Days in Springfield, so we can send lawmakers a loud, clear message: Proposed funding cuts will cost lives and must be reversed.” 

The reductions will severely impede Illinois’ efforts to reach the goals established by the National HIV/AIDS Strategy, which was released by President Obama in 2010.  The strategy establishes ambitious targets to reduce new HIV cases, link more people with HIV to medical care and reduce health disparities. 

To reduce the HIV funding crisis, AFC urges the General Assembly to lift a moratorium on Medicaid expansion to allow the Cook County Health and Hospitals System to implement an 1115 Medicaid waiver.  The program would allow Cook County to receive federal Medicaid matching funding for care provided to uninsured Cook County residents, including people with HIV, without increasing state spending. The waiver, if approved by the federal government, would shift costs for HIV medication from the state to the federal government, yielding savings to Illinois that could be used to strengthen HIV care and prevention efforts. 

Unfortunately, Gov. Quinn also proposed over $2 billion in funding cuts to the Medicaid program.  Although he left implementation to the General Assembly, Quinn said that eligibility levels, provider payment rates to providers and benefits are all subject to changes. 

AFC will strongly fight Medicaid cuts.  The program is the foundation of national health care reform, set to begin in 2014, and provides vital health care to low-income people with HIV and other chronic health conditions, including millions of disabled and homeless individuals. 

Yesterday, Gov. Quinn also proposed spending cuts in several areas of concern for people with HIV:

•    Addiction Treatment for Medicaid Populations (-$5 million or 10 percent cut)
•    Mental Health Grants (-$58 million or 42 percent cut)
•    Emergency and Transitional Housing (-$4.4 million or 52 percent cut)

It wasn’t all bad news. AFC is heartened that the governor did not propose a funding cut for supportive housing, which helps people with chronic illnesses such as HIV live successfully in the community while lowering Medicaid spending.

But AFC needs your support — whether you are someone affected by HIV or someone who simply cares about stopping this unnecessary epidemic. Learn more about Illinois HIV/AIDS Lobby Days at aidschicago.org.  Advocates can stay up to date on budget issues by subscribing to AFC’s Online Action Bulletin and AFC website at aidschicago.org.

Founded in 1985 by community activists and physicians, the AIDS Foundation of Chicago is a catalyst for local, national, and international action against HIV/AIDS.

####
Media contact: Ramon Gardenhire, 301-379-3024

###

Agency budget summaries

Complete FY13 Budget Proposal

Read Gov. Pat Quinn's speech

On November 22, 2011, AIDS Foundation of Chicago (AFC) in conjunction with the Illinois Department of Public Health (IDPH) hosted a webinar that discussed IDPH’s FY12 budget.  This legislative year the General Assembly combined all HIV funding for IDPH into one budget line item. 

What to find out how IDPH plans on spending and allocating these funds? Click here and view webinar presentation materials .

It shouldn’t be a crime to help save someone’s life.

That’s why the AIDS Foundation of Chicago (AFC), the Roosevelt University Institute for Metropolitan Affairs, and ACLU of Illinois are advocating for the passage of a bill in the state Legislature that would allow friends and families of drug overdose victims to call for help without fear of prosecution. As it stands now, too many people flee the scene of a drug overdose because they’re justifiably scared of being arrested.

Passing the Emergency Medical Services (EMS) Access Act, SB 1701, is a common sense way to save lives, said David Ernesto Munar, AFC president. The bill, sponsored by State Rep. Kelly Cassidy (D-IL) and State Sen. Ira Silverstein (D-IL), is expected to be voted on in this week’s veto session after passing unanimously out of the state Senate.

“AFC supports this effort because we value the lives of drug users,” Munar said. “We've made enormous gains in reducing HIV transmission among drug users and helping people suffering from addictions access HIV prevention, medical and addiction treatment services.”

He continued: “Sadly, we've also seen the number of people dying of preventable overdoses increase. This bill will help boost survival among drug users -- a necessary first step to help them access needed medical and behavioral services in order to rebuild their lives.”

Calling 911 can be the difference between a tragic ending and a second chance. Joining AFC and partners in the fight for EMS Access Act’s passage, Naperville mother Karen Hanneman and former Chicago police captain John Roberts have been telling their own heartrending stories to illustrate how the legislation could save lives.

Watch the CBS story above about the bill and why Hanneman and Roberts are supporting it.

The EMS Access Act will protect from prosecution for drug possession those who call 911 or seek medical attention for drug overdose victims. The protection has limits: If large amounts of drugs are found or a drug-induced homicide occurs, law enforcement could prosecute.

But encouraging calling 911 for overdoses would make an important difference. Illinois is one of 16 states where more people die of drug overdoses than car accidents. And it’s getting worse in some counties. Will and McHenry counties saw an increase of more than 100% in heroin-related deaths from 2006 to 2008.

Eight states (Connecticut, Maryland, New Jersey, New Mexico, New York, Washington, Utah) have similar laws in place.

For more information on the EMS Access Act, SB 1701, check out this fact sheet.

The recently enacted Illinois Health Benefits Exchange (Exchange) Law calls for the creation of a 12-member Legislative Study Committee to issue a report to the General Assembly and the Governor on establishment of the Illinois Health Benefits Exchange.

As veto session for the Illinois State Legislature approaches next month, the AIDS Foundation of Chicago (AFC) has weighed in on the proposed Illinois Health Benefits Exchange.  On October 5, 2011, AFC provided written comments on how Illinois can best implement an Exchange that will benefit healthcare providers, social service organizations, community residents, and individuals living with HIV/AIDS, who will be directly impacted by the Exchange. 

Response to Draft Report by the Illinois Health Benefits Exchange Legislative Study Committee
October 6, 2011

The AIDS Foundation of Chicago (AFC) thanks members of this legislative study committee for undertaking the important task of reviewing and providing recommendations on how Illinois can best implement a Health Benefits Exchange. Thank you also to the staff who contributed towards the draft report and for providing expertise to this process.

AFC’s statewide membership, health care providers, social service organizations, community residents, and individuals living with HIV/AIDS will be directly impacted by the decisions of this study committee and by the enacting legislation to be considered by the General Assembly during the Fall 2011 veto session.  

Governance

We reiterate our support for a quasi-governmental Exchange.  AFC applauds the report recommendation that the board not include insurance industry representative, brokers, or agents. While we agree with the recommended number (19) of board members, we believe legislators should be allowed on the board as non-voting members. While their expertise can be valuable to the work of the Exchange, we have concerns about conflicts of interest from legislators who have received campaign contributions from the insurance industry, the amount of time that they would have to devote to fully participate in meetings, and the perception among employers and consumers that the Exchange is an arm of the political parties. 

To ensure that the Exchange meets the care and treatment needs of people living with HIV and AIDS, stakeholder consultation must include HIV/AIDS providers, consumers, and advocates. We recommend at least three individuals who represent communities of color to also serve on the Exchange board. These members can provide important perspectives to craft an Exchange that best serve these populations, which have higher rates of being uninsured and other barriers to health care.

Financing

We agree with the report that the state should leverage its Medicaid program to finance the Exchange administration– so by including Medicaid plans and providers, the state would be bringing in more federal dollars to support the Health Benefits Exchange.

Additionally, given that the Exchange and other health insurance reforms and regulations will encourage and require more people to purchase and enroll in health insurance programs, enrollment in private plans will increase substantially. Therefore, private plans both inside and outside the Exchange should share in the operational costs. Requiring all Illinois insurance health insurance carriers to help pay for the Exchange will ensure that carriers are not discouraged from participating in the Exchange.

Navigators

We support the Navigator Program, insofar as (1) it ensures that outreach is targeted to hard-to-reach and vulnerable populations (including people living with HIV and AIDS currently receiving care through the Ryan White Program); (2) it is conducted by people trained in low-income programs and working with diverse, hard-to-reach populations; (3) it is provided in a culturally and linguistically competent manner; and (4) it allows non-medical providers who are skilled in outreach and benefits coordination to serve as patient Navigators and to directly enroll individuals into the Exchange.

We recommend that the proposed findings/recommendations prohibit a Navigator from receiving compensation from health insurance issuers for enrolling individuals or employers in non-qualified health plans outside of the Exchange.  Such a prohibition would discourage steering to plans outside the exchange. 

In addition, the report should explicit state that Navigators should not be required to be licensed insurance brokers. 

Additional Exchange Goal

We recommend the addition of a new Exchange goal that focuses on the needs of the Exchange’s ultimate customer, the consumer.  While the current seven goals address competition, value, and other factors, consumers—real people who will buy actual health insurance—are barely mentioned.  Goal four says, “Health insurers looking to their finances want to market their products to the largest group of consumers possible.” The only way to achieve that goal and others is to making the exchange friendly to consumers and make sure they have a good experience using the exchange, so the come back the next year.  This goal should be explicit from the start, not an after-thought.  Suggested language is below:

8. The Exchange should make it easy for every Illinoisan to choose a plan that meets their needs.
The power of the Exchange to increase competition and lower costs will be realized only if consumers can easily use the Exchange.  The Exchange should be friendly to consumers and above all focused on providing good customer service.  It should be written in plain English, accessible for people with disabilities, and available in other languages.  Plans should have standard benefits so consumers are not presented with an array of hundreds of plans that all look the same.

Thank you for reviewing these recommendations.  If you have any questions, please feel free to contact me at 312-334-0928 or at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Sincerely,


Ramon Gardenhire
Director Government Affairs

Download document